Upon delivery Alyssa was immediately intubated. When she was born she did quietly cry out a couple times, but it was obvious she was struggling to get air to her lungs and was in respiratory distress. She was soon diagnosed with "Lung Disease". I hate that term because it sounds like a condition an old man who smokes should have, not a sweet little baby. When her first x-ray was taken her lungs were clearly cloudy. They administered a medication into her tube that went straight to her lungs, and a few days later another x-ray revealed her lungs were clearing up.
All of my sister, Rebekah's, babies were born a month early, with similar birth weights as Alyssa, but none of them had any problems with their lungs. Rebekah drinks a lot of caffeine during pregnancy and has a theory that drinking caffeine is what caused her babies lungs to be fully developed, even though all four of them were premature at birth. I actually asked a NICU nurse about that and they said my sister's theory is "absolutely correct" and that they give premies in the NICU caffeine to help their lungs mature. However, she said caffeine would not have helped my baby. The reason her Lung Disease was so extensive is because of the low amniotic fluid she was in for so long. Drinking amniotic fluid during gestation is what helps their lungs develop. *I had to clarify this so I don't get the "I told you so" from my caffeine-pushing sisters.
Alyssa was born at 7:31 am, and I didn't get to see her until later that afternoon. I was so anxious to see her, but too exhausted to push the issue. Anyone that knows me, knows I don't function well on no sleep. I wasn't emotional at all about things. I just felt complete peace and comfort. Even though I hadn't spoken to the doctor yet about her prognosis, I just knew things would be fine. I'm not a worrier, I leave that to Derrick.
A few hours after her birth the Neonatologist came to talk to us. She explained that Alyssa had pretty severe Lung Disease. They were also ordering a head ultrasound to check for a brain bleed. The panic was written all over Derrick's face as he tried to fight back the tears. The doctor explained that she wasn't as active at first as they thought she should be. I didn't quite understand their concern, because newborns just sleep a lot. But the doctor said she still should be responding more when they poke her, or change her, etc. What the Dr didn't know is that Alyssa comes from a long line of heavy sleepers, and that all my babies have been pretty calm, so I still wasn't worried. Also I figured she was just exhausted from a traumatic birth. However, Derrick was a wreck. We began immediately praying and pleading with God for our sweet daughter to be okay. The next morning her ultrasound was preformed and they saw that her brain was perfectly normal. What a relief we felt. We were so thankful our Father in Heaven had answered our prayers.
I have the most thoughtful and sweet friends. First, Kim Paulos came to see me, with an arsenal of gifts. She brought me preemie diapers, several outfits, a big bouquet of beautiful yellow sunny flowers and my favorite treats: peanut butter cups, and cadburry eggs, which I immediately devoured. Later that night Jodi Peterson and Page Otto came also bearing gifts: personalized onsies, a hairbow, a blanket, and lotions. I was so grateful to have friends who care about me. Jodi also brought her nursing pillow for me to borrow, which I immediately took up to the NICU and used it at every feeding and holding. I was enormously thankful for presents and their presence.
After a couple days at the hospital, I was discharged. But thankfully they allowed me to stay in the "Family Room" in the newborn nursery, but said I could only stay one night. That night my mom came up and pulled an all-nighter sitting by Alyssa's bed. I went and laid down in the parent room on the couch and every couple of hours my mom came to wake me to feed Alyssa. As exhausting as it was it paid off because for the first time she got a good latch and nursed for 20 minutes. I was so excited. The doctor had told me that it was at 34 weeks gestation that babies begin to learn to suck, and to not get frustrated if she couldn't get the hang of it initially. Prior to that nursing she had just feed through a feeding tube. As precious as that time was with my sweet baby, by the next morning I knew I could not do it again. I was beyond fatigued and my body was aching as it was trying to heal and recover.
The next evening I begrudgingly went to pack up my stuff out of the "Family Room". I didn't want to leave but could see no other option. As I was packing a nurse came and asked why I was leaving. I told her I was told I could only stay one night. She left to look in to why I couldn't stay. A few minutes later she came back to report she had called the Director personally at home and had acquired permission for me to stay a few more nights. On top of that she brought me a box of food. I hadn't cried throughout this entire process, but I was so touched by her kindness that I sobbed. I truly believe that God sends people into our lives in the exact moment when we most need them.
I spent the next three nights sleeping in the family room at night and spending all day in the NICU with my baby. At one point I became really frustrated and had a bit of a breakdown. Derrick gave me a Priesthood blessing and in it he promised me that I would get my time with her, but that I just needed to be patient. I had to remind myself of those words constantly and I clung to that promise during this process. Mothering a NICU baby is completely different from what I am used to. Their rigid schedules felt so foreign to me. the "feed on demand" and "no bottles, no binkies" approach I had always taken was not how things were done. I hated that I had to ask before holding my own baby, and that we were a slave to the monitors, and endless cords and tubing that dangled from her feet, arms and face. I hated that I couldn't nurse her when I wanted, they had her on a 3 oral feedings a day schedule, and feedings only occurred every three hours. This meant that I was tethered to the electric breast pump for hours each day desperately trying to build a good milk supply. I was terrified that if I couldn't keep up she would be resigned to formula. I was just so thankful that this was happening with my fourth baby, not my first, because I had faith in my body's ability to produce. And I wasn't frustrated the first couple of days, when I was only producing 5ccs. I knew it would come. Within a couple of days the breast milk started coming in plentifully, and I was feeling pretty good. I had forgotten how great it feels to not be pregnant. Even though my body was still recovering and it hurt to sit for long periods of time, I felt awesome and energetic.
Alyssa has the most wonderful nurses and doctors. After a few nights sleeping in the "Family Room" I decided I needed to go home to see my other children. I knew they had been having fun with Grandma Wouden, but that they missed me. I had full trust in the wonderful team of medical professionals. As hard a as it was to walk out of the hospital without my baby, it felt liberating to breath fresh air and feel the sunshine on my face. This was the beginning of several weeks of long days at the hospital. My mom spent 10 days at my house caring for my children and running my household. We thought for sure Alyssa would be home by before she left. But as the day approached it was obvious that would not be the case. So we called Grandma Cahill, my mom's mom. She was so wonderfully willing to come out and help. Her trip was scheduled to last 12 days, which we were sure the baby would be long home before Grandma had to leave. However, here we are just a few days before Grandma is to go home and we are still in the NICU. Alyssa made such fast and great progress at first, and at one point they even took her off the oxygen for a day, and she did great. But that night she became fatigued and started desting. She is now only on room air and just has 0.5 of flow going up her nose. She is doing great except she occasionally desats while feeding. This has been a frustrating roller coaster ride.
The first week and a half she was here I was driving myself crazy starring at the monitors and panicking every time she desated. Then I realized that I wasn't doing her or myself any favors, and no amount of worrying would get her out sooner. So I started pretending I was on vacation. I realized how lucky I was that I was able to just spend every day sitting and holding her, reading books, and watching Netflix on the Ipad while she rested snugly on the nursing pillow on my lap. I knew once she is released I am going to be thrown in to motherhood of 4, and the busy lifestyle that it brings, especially with a two year old at home. So I began cherishing my time in the NICU Where I had nothing to do but snuggle with my sweet baby. It looks like it will be another week or so until we get to go home. I feel so blessed to have this sweet little spirit in our family. I have had nurses tell me she is the "calmest baby in the NICU". I can't wait until I get to have all my children together for the first time. But until then, we are just enjoying the ride.

Derrick didn't get to hold her for the first week and a half of her life. When she was born he only got two days off work. He couldn't hold her during that time because she was still intubated. After that he was able to sneak over during work and see her, but he never held her because he was always in his scrubs which had been contaminated from being in the VA hospital. He was so excited when he was finally able to hold her. Apparently the anticipation wore him out.....
Above is Alyssa's first bath. Below is her second bath. She loved it and didn't cry or squirm at all.
This is me feeding her through the tube in her nose. She is a good eater, but it wears her out, so some of the feedings they give her through the NG tube.
They decided to fortify my breast milk with Neosure to add calories to her feeds. It added a whole two calories to each feeding. I was meeting with the lactation consultant to try to help her learn to breath while she nurses, and I told her they were doing this. She took a sample of my breast milk and tested it for nutritional content. Above are the results and they said my breast milk is substantial and perfect in content (listed are the values per ounce). The lactation consultant showed the findings to the doctor, and they stopped fortifying my milk. Alyssa is doing a good job with gaining weight and she is already almost 6 lbs (she weighed 5lbs 1oz at birth).
This is the cute bassinet Jodi brought over for me to borrow. Behind it is a "NICU survival kit" complete with books, a journal, candy, fruit, magazines, cards, and other goodies. I have the sweetest friends.
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